Some of you might remember that I posted about wanting an all singing all dancing off-roading wheelchair I had seen, that was unfortunatly £11,000 to buy (here is a little reminder……
Since then I have several people asking me why I don’t set up a go fund me, and I have said, I didn’t post about the chair to be “begging for money” that really isn’t my thing, I HATE asking for help as all my friends will tell you.
We did set up a go fund me several months ago to buy my current chair – we got £15 – luckily I had money from my gran which meant I could buy one. It’s great, but doesn’t do off-road like I need.
So my question is, do I set up a go fund me, as several people have suggested/offered to set up for me, or not, and realistically how effective would it be, I’m not a big time blogger, I don’t make YouTube content, I only have 1.5k followers on Instagram and I just think it would be a flop.
This as you can tell is the Trekinetic GTE, and it is just short of £13,000 and can be found here – https://trekinetic.com/
The only as you can tell is the price. This chair would allow me to do so much more. Don’t get me wrong, I love my chair and it’s great for day to day life, but my family are missing out on so much due to the fact that if it ain’t smooth tarmac, then I don’t move. They won’t to go biking, walk through the woods, go to the nature reserve etc, and either they cannot or I am left behind.
I’m not posting this post for sympathy, or money or anything other than sharing the stark reality of a disability and how equipment to enable our independence can disable it just as much by the cost. I only qualify for a manual chair, that my partner has to push me in, defeats the purpose a little.
When I worked in education (for 20 years) I NEVER got an end of the year gift. I worked primarily with special needs and deaf children, and often didn’t get to see the parents or families more than once a year. I didn’t work in education for presents, don’t get me wrong there, but watching teacher receiving 35+ presents made me wonder just how much parents actually spend.
Amelia had her teacher and 2 teaching assistants in her class this year, Colby had his teacher and a higher level teaching assistant.
I wasn’t going to do presents to start with, simply because I couldn’t afford it, but then had a thought, why not make my own.
I have been dabbling with nabbi bead art for a while, and I decided to put this skill (and Dan’s ironing skills – I cannot manage an iron with my wrist/arm pain) to use, these are the presents I made. I did cards for all 5 members of staff, and they also go a box of chocolates.
Then I had a think about extra presents for the teachers who did so much over this year for all the kids, and these are what I made. They are far from perfect, but I’m really happy with how they turned out.
I have been told that I should make things and sell them. I could do cards, hair clips (I already made one for Moo which I’ll include a photo of at the end), key rings, badges, magnets etc. What do you think?
Today my Mouse completed his last day in year 3, and my Moomin completed her last day in Year 1.
It’s been a crazy school year, the children spent January to April at home, and we had a few isolation periods too where they were home due to members of their bubble testing positive for covid. This has had an effect on the children (more so CJ than Moo due to his additional needs) learning wise, but they have both worked so hard.
We now have 6 weeks where the children are at home for their summer holidays. We have a few trips away planned, it’s Dan and Moo’s birthday (35 and 6) and I’m sure we will spend a lot of time in the garden (hopefully in the pool), going to the local parks, and in the back street with the kids next door and their bikes. The children next door are the same age as CJ (in the same class at school) and one year younger than Moo, and they get on great. We will also go visit my best girl and her mum (my sister from another set of parents) at the seaside.
Throw some ideas at me for good things to keep kids (8 and nearly 6) busy. I told them we may be able to make slime (but not bring it into the house), and we may go swimming to the new pool in Pontefract.
I hope all those with kids have a good 6 weeks – I might not have any hair by the time they go back to school – wish me luck!
Did your kids stay up last night to watch the big match? Did you stay up to watch the match? Are you going to be dealing with grumpy, tired kids?
I’m not a football (soccer for my followers outside the UK) fan, neither really are Dan or Moo (we watch it, but not religiously, I’m a rugby league girl), CJ however loves football. Last night I told the kids they could stay up late to watch the final, and we watched it together (did I jinx it by doing so? Hmmmmm!). The hopes of the whole nation were piled on the shoulders of a team of amazing young men. If they won the cup, would it make having to deal with the covid pandemic that little bit easier? Maybe it would have.
When we scored in the second minute, I thought we stood a chance, the team played strongly as a unit, but Italy managed to slip a goal past Jordan Pickford in the second half when to be fair, the team seemed to be lacking the spark of the first half (that is only my opinion). If it hadn’t been for him however it might have been a different story with more goals.
When we got to penalties, 5 amazing young men stepped up to do their best, and I’m sure every England fan will agree, they have a bright future ahead of them.
HOWEVER – three of those players had to deal with racial abuse after last nights match, it’s disgusting, and intolerable. Marcus Rachford (23, born in Manchester), Jadon Sancho (21, born in Camberwell London) and Bukayo Sake (19, born in Ealing London) stepped up in front of all of the nation, and millions of people all over the world to take penalties, they missed, does that give the right to abuse someone? Some so called fans think it does (the same as some people think it’s ok to abuse disabled people), luckily they are the minority and hopefully they are being dealt with accordingly. These players were born in the UK, their skin colour doesn’t make them different. From what I have read, Southgate asked them to take the penalties and they said yes. Many argue that they were thrown under the bus – what do you think?
As a side note – it was lovely to see their team mate Kelvin Phillips rushing straight over to console the young players – kudos to him.
No matter what, I am proud of these young men and they should be proud of themselves too
Enough said, I don’t need to say anything, the actions tell a thousand stories! This is our little old man Ginger Biscuit the 3rd (also know as Cookie.
Cookie is our rescue Syrian hamster. We got him in October 2019 and we were told he was roughly 6 months old. We are starting to see him slowing down, and noticing signs of old age, however he is still quick off the go to get to food or one of his favourite whimzee treats. We even found a hole in the back of his house where he had chewed himself a back door!
We will all be devestated when this beautiful old man leaves us to cross the rainbow bridge as he is so gentle, he even sits on the kids knees and lets them handle him, and kids are not always gentle.
Did you know that you can recycle a bouncy castle and a paddle/swimming pool? Me neither until yesterday!
We are currently homeschooling again with a 10 day isolation for both kids as someone at breakfast club tested positive. This is not a pleasant experience, Colby really struggles with schooling, and Moo hates when I have to pay him attention. By the end of the day….
I am tee-total, so I had a bottle of Lucozade instead. I also had some down time searching across the net where I came across this company who make AMAZING bags/pouches etc. How beautiful is this bag (I REALLY want one!)
These bags are made from recycled swimming/paddling pool and bouncy castles, how cool is that. Use and reuse.
I considered sending our old pools in to them, and rolling the kids inside them first, but. apparently I cannot do that however.
Check out my Instagram post about this amazing company, and have a look at their website and Instagram page.
This is Miss Izzi one of our beautiful cats. Izzi is a long haired British house cat, and she sheds like crazy. She also doesn’t know how to pad without retracting her claws, so I get scratched to pieces while she has cuddles. Today I didn’t use the blanket over me, so I look like a white and brown fluff ball!
Izzi and Yoda (her brother, I will include a photo of him later) were taken away from their mum too early. Because of this they didn’t learn to pad with their claws retracted, so we become a human pin cushion when they pad us. They also didn’t learn to groom themselves properly. We quite regularly have to shave big clumps of hair from her side, back, tummy and bum, which she doesn’t like, but it’s a necessity as they get really big and really tight.
Both cats are roughly 9 years old, and as of now they are both doing really well. Sure, life would be easier without them (sometimes they pee on furniture/the floor etc) but we love them just the way they are!
Just for good measure, here is Ginger Biscuit the first, aka Cookie, our Syrian hamster
I came across a post on Instagram today describing how some wonderful young ladies (I have the same problem, but I’m neither young or beautiful – and we cannot forget young men who have the same problems as we do) have people asking them why they are in a wheelchair when they are quite clearly ambulatory. This is her post…
Next time you see someone stand from their wheelchair, or someone who looks “normal” sits in a disabled seat on the bus, think about what they may be masking, the pain, the anxiety, the depression, they may have ASD and be in a wheelchair to keep them safe, without asking them, you just don’t know. Just because we can use our legs sometimes, does not mean we are not disabled or that we do not need a wheelchair, a bus seat, or a parking space. Please think before you speak!
Meet Ginger Biscuit the 3rd (also know as Cookie) our crazy Syrian Hamster. We have had Cookie since September 2019, and we believe he was roughly 6 months old when we adopted him as a rescue.
When we got him he was really tame, but we did have to work with him for a fair while before he would let us hold him. Being held isn’t his favourite past time, he would much rather try and escape, but he is happy to let the kids hold and stroke him.
His favourite foods are Whimzees dog toothbrushes, cheese, grapes and blueberries. It appears however, he may also have a love for chicken tikka masala and rice.
Hope you enjoyed meeting our littlest member of the family!