Let’s go back to 8:10am today, Monday 18th October 2021……
I was ready…..
The kids were ready…..
The bags were ready…..
My wheelchair was ready…..
I closed the door and put in the key, which then did this……
I noticed the key was bent, looked at it, and next thing I know it is in two pieces in my hand. This is the last thing I needed as we were going to pick up Colby’s best mate on the way.
I had to think on my feet…. I came in, closed the door, pushed the sofa over the door and went out the back.
I sent Colby round to bring my wheelchair, it should have taken 30 seconds, instead they went the long way round and left me waiting, needless to say, I wasn’t impressed. They then had to just about jog to school so we were not late.
I got home and had to come through the back and get my chair through the kitchen which is a nightmare in itself when you have mobility issues.
The only key we now have is Dan’s and he is working, luckily my parents are grabbing the monkeys for me tonight.
I’m chilling on the sofa in my pjs and oodie watching tv.
Have a great week, see you soon
Lots of love xxx
Just a quick reminder – I am currently trying to raise money for a new electric wheelchair. Please go check my story out, and if you cannot donate can you please at least share for me. The link is https://gofund.me/03c3b97d
Do you ever feel like just giving up? Like you don’t know where to turn, who will be there for you, who will help you……. At the moment I feel like giving up.
Everything is getting me down at the moment, and my mental and physical health are suffering. I have no energy, I am sleeping less than I normally sleep (I only get 3-4 hours usually), I’m in pain, my anxiety is majorly high (I cannot stand being in the room as Dan and the kids when they are eating Etc, it makes me want to cry) and I know that I am holding my family back.
There is so much stuff the kids and Dan want to do, but because I cannot join in, they don’t get to do it. I know it stresses Dan out because he knows the effect it has on me mentally, and then there is Colb, he wants to do so much and when we are snuggling on a night he will say “mummy I want to do……… BUT I know you cannot”, to see his face and hear the crack in his voice makes me want to cry.
What’s the point in this post you may ask, well to be honest I don’t know, I am just letting my feelings out.
If you get chance please could you pop over to my gofundme? If you cannot donate can you please share for me, or if you know of any charities that might help can you send me their link.
Hey all, sorry I went AWOL again, but the last few weeks have truly been a nightmare.
First Dan was diagnosed with covid, and even though he is double jabbed he was really poorly. Luckily the kids and I didn’t contract it, but the stress did kick off a bad flare, so I’m struggling with pain, not sleeping leading to exhaustion and just being generally unsettled.
Then today, this happened…….
I heard a clunk on my chair, and got to my grans to find that my chair had literally snapped, leaving it with a free floating seat, which as you can imagine is not a good thing.
I only got this chair (as a replacement for a faulty one) in March, and while I’m aware that I do cause wear and tear, I don’t cause that much. Luckily the company are sending me out a new frame that will be here on Wednesday.
Carrying on from the chair thing – as you know I am trying to get a new chair that will allow me to go off-road, on the beach Etc. The kids and Dan went geocaching at the weekend, I was left in the car as I couldn’t access the trails. This means what should have been a family day out wasn’t for me.
I have set up a gofundme page (I will link at the end) but if you know anyone from a charity or such who might me able to help with a donation please could you let me know, or give them my email address. Even just sharing the gofundme link would be amazing.
The topic is in the title today. It’s freezing and very wet in my part of West Yorkshire. The forecast for today says the rain is well set in for the rest of the day.
I have been to see my grandma this morning, as usual we did the school run on foot/in chair (I drop the kids off at 8:30 for school) and then I wheeled down to grans. She asked me if I could pop to the bread shop for her and just as I got outside, the heavens opened (as my mum would say – love you mum). I was so grateful for my pack away wheelchair poncho (I will link at the end) as I only had a hoodie on. It has a good, is fastened by poppers up the front, and for me it is long enough to keep the majority of my body nice and dry. Mine has elephants on (one of my favourite animal) and I love it. I keep it permanently clipped to my chair so it’s always there in an emergency.
I hope wherever you are in the world you have a bright and sunny day.
Hey all, hope you are all well. We are on the second week of summer holidays for the kids (vacation for those of you not in the UK) and as you might have seen in one of my previous posts, I made some cards for the kids teachers.
Now while I was happy with these, I didn’t like my writing, and I’m hoping I can sell some to raise money towards the new chair I want, which means it needs a lot of improvement.
I have decided I am going to try learning modern calligraphy, I have watched some YouTube videos, and I have a practice book and pen set (but the fountain pen hurts my fingers, I forgot what it was like to write with one) and had a try today. I am definitely going to follow the advice on Natalie’s Outlet
I may also get some of the pens she recommended to make my writing better. These are my attempts so far
Let me know what you think, and if you have any tips. Writing makes my hands hurt so so bad, but I want it to be beautiful for the cards as it’s the personal touch instead of a printed generic message.
Some of you might remember that I posted about wanting an all singing all dancing off-roading wheelchair I had seen, that was unfortunatly £11,000 to buy (here is a little reminder……
Since then I have several people asking me why I don’t set up a go fund me, and I have said, I didn’t post about the chair to be “begging for money” that really isn’t my thing, I HATE asking for help as all my friends will tell you.
We did set up a go fund me several months ago to buy my current chair – we got £15 – luckily I had money from my gran which meant I could buy one. It’s great, but doesn’t do off-road like I need.
So my question is, do I set up a go fund me, as several people have suggested/offered to set up for me, or not, and realistically how effective would it be, I’m not a big time blogger, I don’t make YouTube content, I only have 1.5k followers on Instagram and I just think it would be a flop.
This as you can tell is the Trekinetic GTE, and it is just short of £13,000 and can be found here – https://trekinetic.com/
The only as you can tell is the price. This chair would allow me to do so much more. Don’t get me wrong, I love my chair and it’s great for day to day life, but my family are missing out on so much due to the fact that if it ain’t smooth tarmac, then I don’t move. They won’t to go biking, walk through the woods, go to the nature reserve etc, and either they cannot or I am left behind.
I’m not posting this post for sympathy, or money or anything other than sharing the stark reality of a disability and how equipment to enable our independence can disable it just as much by the cost. I only qualify for a manual chair, that my partner has to push me in, defeats the purpose a little.
When I worked in education (for 20 years) I NEVER got an end of the year gift. I worked primarily with special needs and deaf children, and often didn’t get to see the parents or families more than once a year. I didn’t work in education for presents, don’t get me wrong there, but watching teacher receiving 35+ presents made me wonder just how much parents actually spend.
Amelia had her teacher and 2 teaching assistants in her class this year, Colby had his teacher and a higher level teaching assistant.
I wasn’t going to do presents to start with, simply because I couldn’t afford it, but then had a thought, why not make my own.
I have been dabbling with nabbi bead art for a while, and I decided to put this skill (and Dan’s ironing skills – I cannot manage an iron with my wrist/arm pain) to use, these are the presents I made. I did cards for all 5 members of staff, and they also go a box of chocolates.
Then I had a think about extra presents for the teachers who did so much over this year for all the kids, and these are what I made. They are far from perfect, but I’m really happy with how they turned out.
I have been told that I should make things and sell them. I could do cards, hair clips (I already made one for Moo which I’ll include a photo of at the end), key rings, badges, magnets etc. What do you think?
Today my Mouse completed his last day in year 3, and my Moomin completed her last day in Year 1.
It’s been a crazy school year, the children spent January to April at home, and we had a few isolation periods too where they were home due to members of their bubble testing positive for covid. This has had an effect on the children (more so CJ than Moo due to his additional needs) learning wise, but they have both worked so hard.
We now have 6 weeks where the children are at home for their summer holidays. We have a few trips away planned, it’s Dan and Moo’s birthday (35 and 6) and I’m sure we will spend a lot of time in the garden (hopefully in the pool), going to the local parks, and in the back street with the kids next door and their bikes. The children next door are the same age as CJ (in the same class at school) and one year younger than Moo, and they get on great. We will also go visit my best girl and her mum (my sister from another set of parents) at the seaside.
Throw some ideas at me for good things to keep kids (8 and nearly 6) busy. I told them we may be able to make slime (but not bring it into the house), and we may go swimming to the new pool in Pontefract.
I hope all those with kids have a good 6 weeks – I might not have any hair by the time they go back to school – wish me luck!
Today is parent review day for my eldest and youngest and to say I am proud is an understatement, I’m bursting with pride!
The girl thing, has been marked as expected but her teacher said really she is working above expectation, she just didn’t want to put too much pressure on her.. She got 37/40 in her mock phonics assessment. She is polite, well mannered, always happy to help her friends and staff, and she said her confidence and her independence have grown massively this year from the girl who tried to get you to help her with everything to the girl who is just about completely working on her own! She agrees she was ready for year 2 back at Easter said she said her next teacher works the same as she does so will be perfect for Moo. The one thing to work on is the fact she never stops talking – it’s the same at home so I know the problem well. She ended by saying that she is just going succeed in anything she does.
The boy thing really struggles with school we are still waiting on ADHD/ASD, and he has Sensory Processing Disorder, but he is working toward in reading,. In literacy he needs someone with him to remind him to put capitals, full stops, punctuation etc when he does independent work for english, but he knows all the grammar etc and if they give him it to organise he can do it every time. In maths again he can tell them answers verbally if they sit with him (he does maths with his teacher a lot and they sit with him) but if they leave him unsupervised he just writes any old answer. They are saying he needs a scribe when he comes to tests, and they gave him one for these and he did well. They said he is never naughty as that he is a lovely polite well mannered boy and all his class love him. He did say he has been a lot more stressed and using his chew/fidget more this half term, but he agrees it is understandable with all the ups and downs of isolation.