Disabled blogger · Family blog

G.E.R.D how I hate you

My poor little man has been up half the night bringing up lots of nasty stomach acid and phlegm, my towels will testify to this.

GERD WE HATE YOU!!!!

He is currently laid on the sofa watching videos on YouTube, I think he will fall asleep soon to be honest as he is yawning his head off. He isn’t getting away with no school work however, I have asked his teacher what to do with him!

It’s awful seeing your babies poorly, especially when there is nothing you can do about it. Because he has Sensory Processing Disorder he struggles with being sick as it freaks him out, and it is hard to comfort him

Have a good day no matter what you are doing, and if you could would you please give me a follow, and share my page.

Kisses xxx
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Back to school Hip Hip Hooooooraaaaaaaay

Stinky and Pinky ready for their first day in year 4 and 2

Have you got little ones? Have they gone back to school? My two went back yesterday. Moo was very reluctant as all she wants to do is stay with me, Colby was so happy to see his best mates.

The kids and I were ready 30 minutes before we needed to set off, this was a shock as usually we are pushing it. Colb even got shoes and socks on with no drama (he has SPD and hates socks).

We did an advance visit on Monday so Colbs could see where he was sat, I could meet his teacher, and then pass information along for her regarding his “quirks”. He is now in year 4, and I’m not going to lie, I’m worried about him progressing up school as he is very very clever but struggles to transfer that onto paper.

Moo is in year 2, and to be honest I am not worried about her. She is on track for gifted and talented pathways. She will soar this year, and she is happy with her teacher.

They both came home last night happy and excited to share their day, let’s see how long it lasts!

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Handwriting is hard work!

Hey all, hope you are all well. We are on the second week of summer holidays for the kids (vacation for those of you not in the UK) and as you might have seen in one of my previous posts, I made some cards for the kids teachers.

An example of the card.

Now while I was happy with these, I didn’t like my writing, and I’m hoping I can sell some to raise money towards the new chair I want, which means it needs a lot of improvement.

I have decided I am going to try learning modern calligraphy, I have watched some YouTube videos, and I have a practice book and pen set (but the fountain pen hurts my fingers, I forgot what it was like to write with one) and had a try today. I am definitely going to follow the advice on Natalie’s Outlet

YouTube – https://youtu.be/Jzlx9TMCsVA

Instagram – https://instagram.com/nataliesoutlet?utm_medium=copy_link

I may also get some of the pens she recommended to make my writing better. These are my attempts so far

Not perfect, but happy!

Let me know what you think, and if you have any tips. Writing makes my hands hurt so so bad, but I want it to be beautiful for the cards as it’s the personal touch instead of a printed generic message.

Have a good day/week,

*mwah*
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To go fund me or not to go fund me that is the question….

Some of you might remember that I posted about wanting an all singing all dancing off-roading wheelchair I had seen, that was unfortunatly £11,000 to buy (here is a little reminder……

😍😍😍😍😍

Since then I have several people asking me why I don’t set up a go fund me, and I have said, I didn’t post about the chair to be “begging for money” that really isn’t my thing, I HATE asking for help as all my friends will tell you.

We did set up a go fund me several months ago to buy my current chair – we got £15 – luckily I had money from my gran which meant I could buy one. It’s great, but doesn’t do off-road like I need.

So my question is, do I set up a go fund me, as several people have suggested/offered to set up for me, or not, and realistically how effective would it be, I’m not a big time blogger, I don’t make YouTube content, I only have 1.5k followers on Instagram and I just think it would be a flop.

What to do!
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Does anyone have £11,000 they want to donate to me?

I came across this absolute stunner on Instagram, it was being showcased by 3 Wheeled Rambler (https://instagram.com/3wheeledrambler?utm_medium=copy_link) and I instantly fell in love.

This as you can tell is the Trekinetic GTE, and it is just short of £13,000 and can be found here – https://trekinetic.com/

Oh my days I’m in love!

The only as you can tell is the price. This chair would allow me to do so much more. Don’t get me wrong, I love my chair and it’s great for day to day life, but my family are missing out on so much due to the fact that if it ain’t smooth tarmac, then I don’t move. They won’t to go biking, walk through the woods, go to the nature reserve etc, and either they cannot or I am left behind.

I’m not posting this post for sympathy, or money or anything other than sharing the stark reality of a disability and how equipment to enable our independence can disable it just as much by the cost. I only qualify for a manual chair, that my partner has to push me in, defeats the purpose a little.

Please go over and check out 3 Wheeled Rambler (link above) and trekinetic (https://instagram.com/trekinetic?utm_medium=copy_link)

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End of year gifts, do parents pay too much?

When I worked in education (for 20 years) I NEVER got an end of the year gift. I worked primarily with special needs and deaf children, and often didn’t get to see the parents or families more than once a year. I didn’t work in education for presents, don’t get me wrong there, but watching teacher receiving 35+ presents made me wonder just how much parents actually spend.

Amelia had her teacher and 2 teaching assistants in her class this year, Colby had his teacher and a higher level teaching assistant.

I wasn’t going to do presents to start with, simply because I couldn’t afford it, but then had a thought, why not make my own.

I have been dabbling with nabbi bead art for a while, and I decided to put this skill (and Dan’s ironing skills – I cannot manage an iron with my wrist/arm pain) to use, these are the presents I made. I did cards for all 5 members of staff, and they also go a box of chocolates.

Colby was in Turtles class
Amelia was in Elephant class

Then I had a think about extra presents for the teachers who did so much over this year for all the kids, and these are what I made. They are far from perfect, but I’m really happy with how they turned out.

Door plaques

I have been told that I should make things and sell them. I could do cards, hair clips (I already made one for Moo which I’ll include a photo of at the end), key rings, badges, magnets etc. What do you think?

Not perfect but she loves it!
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SIX whole week……. SIX!!!

6 week holidays start today!

Today my Mouse completed his last day in year 3, and my Moomin completed her last day in Year 1.

It’s been a crazy school year, the children spent January to April at home, and we had a few isolation periods too where they were home due to members of their bubble testing positive for covid. This has had an effect on the children (more so CJ than Moo due to his additional needs) learning wise, but they have both worked so hard.

We now have 6 weeks where the children are at home for their summer holidays. We have a few trips away planned, it’s Dan and Moo’s birthday (35 and 6) and I’m sure we will spend a lot of time in the garden (hopefully in the pool), going to the local parks, and in the back street with the kids next door and their bikes. The children next door are the same age as CJ (in the same class at school) and one year younger than Moo, and they get on great. We will also go visit my best girl and her mum (my sister from another set of parents) at the seaside.

Throw some ideas at me for good things to keep kids (8 and nearly 6) busy. I told them we may be able to make slime (but not bring it into the house), and we may go swimming to the new pool in Pontefract.

I hope all those with kids have a good 6 weeks – I might not have any hair by the time they go back to school – wish me luck!

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Super proud mummy alert!

Report day

Today is parent review day for my eldest and youngest and to say I am proud is an understatement, I’m bursting with pride!

The girl thing, has been marked as expected but her teacher said really she is working above expectation, she just didn’t want to put too much pressure on her.. She got 37/40 in her mock phonics assessment. She is polite, well mannered, always happy to help her friends and staff, and she said her confidence and her independence have grown massively this year from the girl who tried to get you to help her with everything to the girl who is just about completely working on her own! She agrees she was ready for year 2 back at Easter said she said her next teacher works the same as she does so will be perfect for Moo. The one thing to work on is the fact she never stops talking – it’s the same at home so I know the problem well. She ended by saying that she is just going succeed in anything she does.

The boy thing really struggles with school we are still waiting on ADHD/ASD, and he has Sensory Processing Disorder, but he is working toward in reading,. In literacy he needs someone with him to remind him to put capitals, full stops, punctuation etc when he does independent work for english, but he knows all the grammar etc and if they give him it to organise he can do it every time. In maths again he can tell them answers verbally if they sit with him (he does maths with his teacher a lot and they sit with him) but if they leave him unsupervised he just writes any old answer. They are saying he needs a scribe when he comes to tests, and they gave him one for these and he did well. They said he is never naughty as that he is a lovely polite well mannered boy and all his class love him. He did say he has been a lot more stressed and using his chew/fidget more this half term, but he agrees it is understandable with all the ups and downs of isolation.

All in all my kids are just simply amazing!

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July 19th 2021 – is it too soon!

A photo taken of British people protesting lockdown

On Monday 19th July 2021 life in the UK is to go back to “normal” no more masks, no more restrictions, pubs and clubs can open as they please, as can restaurants, with no maximum number, people can have parties and mix with others they may or may not know.

The thing that they are not telling you is that numbers are shooting through the roof. Where I live near Leeds, one of our main hospitals is already full with covid+ patients, the 2nd is on its way to being full, the staff have been put on high alert (which means my partner’s department will be closed and he will have to transfer to other areas to cover the staff needed to cover covid icu).

I did a poll on my Instagram the other day, and lots of friends say they will carry on wearing masks. The NHS have also made the suggestion that all its staff are expected to wear a mask whenever out, and treat it as though we haven’t eased restrictions.

They are predicting a steep incline (and it has already had a massive upturn with more cases in the last week then we had last autumn, and to be honest, I’m expecting to be back in lockdown again by the end of September.

Stay safe and please be responsible for the sake of my partner, his colleagues and all of us who are compromised due to disabilities.

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Devastated nation…… disgusting “fans”

Did your kids stay up last night to watch the big match? Did you stay up to watch the match? Are you going to be dealing with grumpy, tired kids?

I’m not a football (soccer for my followers outside the UK) fan, neither really are Dan or Moo (we watch it, but not religiously, I’m a rugby league girl), CJ however loves football. Last night I told the kids they could stay up late to watch the final, and we watched it together (did I jinx it by doing so? Hmmmmm!). The hopes of the whole nation were piled on the shoulders of a team of amazing young men. If they won the cup, would it make having to deal with the covid pandemic that little bit easier? Maybe it would have.

When we scored in the second minute, I thought we stood a chance, the team played strongly as a unit, but Italy managed to slip a goal past Jordan Pickford in the second half when to be fair, the team seemed to be lacking the spark of the first half (that is only my opinion). If it hadn’t been for him however it might have been a different story with more goals.

When we got to penalties, 5 amazing young men stepped up to do their best, and I’m sure every England fan will agree, they have a bright future ahead of them.

HOWEVER – three of those players had to deal with racial abuse after last nights match, it’s disgusting, and intolerable. Marcus Rachford (23, born in Manchester), Jadon Sancho (21, born in Camberwell London) and Bukayo Sake (19, born in Ealing London) stepped up in front of all of the nation, and millions of people all over the world to take penalties, they missed, does that give the right to abuse someone? Some so called fans think it does (the same as some people think it’s ok to abuse disabled people), luckily they are the minority and hopefully they are being dealt with accordingly. These players were born in the UK, their skin colour doesn’t make them different. From what I have read, Southgate asked them to take the penalties and they said yes. Many argue that they were thrown under the bus – what do you think?

As a side note – it was lovely to see their team mate Kelvin Phillips rushing straight over to console the young players – kudos to him.

No matter what, I am proud of these young men and they should be proud of themselves too