Disabled blogger

Wow, what a nightmare of a few weeks…..

Hey all, sorry I went AWOL again, but the last few weeks have truly been a nightmare.

First Dan was diagnosed with covid, and even though he is double jabbed he was really poorly. Luckily the kids and I didn’t contract it, but the stress did kick off a bad flare, so I’m struggling with pain, not sleeping leading to exhaustion and just being generally unsettled.

Then today, this happened…….

Arghhhh

I heard a clunk on my chair, and got to my grans to find that my chair had literally snapped, leaving it with a free floating seat, which as you can imagine is not a good thing.

I only got this chair (as a replacement for a faulty one) in March, and while I’m aware that I do cause wear and tear, I don’t cause that much. Luckily the company are sending me out a new frame that will be here on Wednesday.

Carrying on from the chair thing – as you know I am trying to get a new chair that will allow me to go off-road, on the beach Etc. The kids and Dan went geocaching at the weekend, I was left in the car as I couldn’t access the trails. This means what should have been a family day out wasn’t for me.

I have set up a gofundme page (I will link at the end) but if you know anyone from a charity or such who might me able to help with a donation please could you let me know, or give them my email address. Even just sharing the gofundme link would be amazing.

Sending love to you all

Sx

https://gofund.me/03c3b97d

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It’s an under the blankety (or rain poncho sorta day 👨🏼‍🦼🌂🌧 (not sponsored)

It’s wet……

The topic is in the title today. It’s freezing and very wet in my part of West Yorkshire. The forecast for today says the rain is well set in for the rest of the day.

I have been to see my grandma this morning, as usual we did the school run on foot/in chair (I drop the kids off at 8:30 for school) and then I wheeled down to grans. She asked me if I could pop to the bread shop for her and just as I got outside, the heavens opened (as my mum would say – love you mum). I was so grateful for my pack away wheelchair poncho (I will link at the end) as I only had a hoodie on. It has a good, is fastened by poppers up the front, and for me it is long enough to keep the majority of my body nice and dry. Mine has elephants on (one of my favourite animal) and I love it. I keep it permanently clipped to my chair so it’s always there in an emergency.

I hope wherever you are in the world you have a bright and sunny day.

Adult Wheelchair Ponchos

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9/11 – the day that left devastation in the hearts of everyone

20 years today, 2 airplanes crashed into the twin towers in New York killing thousands of people. Thousands of innocent people who were grandmas, grandads, mums, dads, brothers, sisters, uncles, aunties, sons, daughters, nieces, nephews and friends.

This was a despicable act of terrorism. What we do forget was it could have also been so much worse, a plane hit the Pentagon, and in Pennsylvania, selfless individuals caused the plane they were on board of to crash to avoid it causing more death.

I don’t think any of us will ever comprehend what happened on that fateful day. The radical views brainwashed into those who gave their life and took the lives of others for Al Qaeda. Nearly 3000 people’s lives were taken on that day.

To all those who fought on that day to rescue as many as they could, the firemen, the EMTs, the police, doctors, nurses, surgeons, even passers by, and those who also gave their life in the line of their duty, I thank you, from the bottom of my heart. I cannot imagine how scared you must have been. So from my part of the UK I send my thanks to you all.

A fitting monument sits at the site of 9/11, and I hope one day to be able to visit and pay my respects.

The World Trade Centre Monument.
Disabled blogger · Family blog

G.E.R.D how I hate you

My poor little man has been up half the night bringing up lots of nasty stomach acid and phlegm, my towels will testify to this.

GERD WE HATE YOU!!!!

He is currently laid on the sofa watching videos on YouTube, I think he will fall asleep soon to be honest as he is yawning his head off. He isn’t getting away with no school work however, I have asked his teacher what to do with him!

It’s awful seeing your babies poorly, especially when there is nothing you can do about it. Because he has Sensory Processing Disorder he struggles with being sick as it freaks him out, and it is hard to comfort him

Have a good day no matter what you are doing, and if you could would you please give me a follow, and share my page.

Kisses xxx
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Back to school Hip Hip Hooooooraaaaaaaay

Stinky and Pinky ready for their first day in year 4 and 2

Have you got little ones? Have they gone back to school? My two went back yesterday. Moo was very reluctant as all she wants to do is stay with me, Colby was so happy to see his best mates.

The kids and I were ready 30 minutes before we needed to set off, this was a shock as usually we are pushing it. Colb even got shoes and socks on with no drama (he has SPD and hates socks).

We did an advance visit on Monday so Colbs could see where he was sat, I could meet his teacher, and then pass information along for her regarding his “quirks”. He is now in year 4, and I’m not going to lie, I’m worried about him progressing up school as he is very very clever but struggles to transfer that onto paper.

Moo is in year 2, and to be honest I am not worried about her. She is on track for gifted and talented pathways. She will soar this year, and she is happy with her teacher.

They both came home last night happy and excited to share their day, let’s see how long it lasts!

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Handwriting is hard work!

Hey all, hope you are all well. We are on the second week of summer holidays for the kids (vacation for those of you not in the UK) and as you might have seen in one of my previous posts, I made some cards for the kids teachers.

An example of the card.

Now while I was happy with these, I didn’t like my writing, and I’m hoping I can sell some to raise money towards the new chair I want, which means it needs a lot of improvement.

I have decided I am going to try learning modern calligraphy, I have watched some YouTube videos, and I have a practice book and pen set (but the fountain pen hurts my fingers, I forgot what it was like to write with one) and had a try today. I am definitely going to follow the advice on Natalie’s Outlet

YouTube – https://youtu.be/Jzlx9TMCsVA

Instagram – https://instagram.com/nataliesoutlet?utm_medium=copy_link

I may also get some of the pens she recommended to make my writing better. These are my attempts so far

Not perfect, but happy!

Let me know what you think, and if you have any tips. Writing makes my hands hurt so so bad, but I want it to be beautiful for the cards as it’s the personal touch instead of a printed generic message.

Have a good day/week,

*mwah*
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To go fund me or not to go fund me that is the question….

Some of you might remember that I posted about wanting an all singing all dancing off-roading wheelchair I had seen, that was unfortunatly £11,000 to buy (here is a little reminder……

😍😍😍😍😍

Since then I have several people asking me why I don’t set up a go fund me, and I have said, I didn’t post about the chair to be “begging for money” that really isn’t my thing, I HATE asking for help as all my friends will tell you.

We did set up a go fund me several months ago to buy my current chair – we got £15 – luckily I had money from my gran which meant I could buy one. It’s great, but doesn’t do off-road like I need.

So my question is, do I set up a go fund me, as several people have suggested/offered to set up for me, or not, and realistically how effective would it be, I’m not a big time blogger, I don’t make YouTube content, I only have 1.5k followers on Instagram and I just think it would be a flop.

What to do!
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Does anyone have £11,000 they want to donate to me?

I came across this absolute stunner on Instagram, it was being showcased by 3 Wheeled Rambler (https://instagram.com/3wheeledrambler?utm_medium=copy_link) and I instantly fell in love.

This as you can tell is the Trekinetic GTE, and it is just short of £13,000 and can be found here – https://trekinetic.com/

Oh my days I’m in love!

The only as you can tell is the price. This chair would allow me to do so much more. Don’t get me wrong, I love my chair and it’s great for day to day life, but my family are missing out on so much due to the fact that if it ain’t smooth tarmac, then I don’t move. They won’t to go biking, walk through the woods, go to the nature reserve etc, and either they cannot or I am left behind.

I’m not posting this post for sympathy, or money or anything other than sharing the stark reality of a disability and how equipment to enable our independence can disable it just as much by the cost. I only qualify for a manual chair, that my partner has to push me in, defeats the purpose a little.

Please go over and check out 3 Wheeled Rambler (link above) and trekinetic (https://instagram.com/trekinetic?utm_medium=copy_link)

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End of year gifts, do parents pay too much?

When I worked in education (for 20 years) I NEVER got an end of the year gift. I worked primarily with special needs and deaf children, and often didn’t get to see the parents or families more than once a year. I didn’t work in education for presents, don’t get me wrong there, but watching teacher receiving 35+ presents made me wonder just how much parents actually spend.

Amelia had her teacher and 2 teaching assistants in her class this year, Colby had his teacher and a higher level teaching assistant.

I wasn’t going to do presents to start with, simply because I couldn’t afford it, but then had a thought, why not make my own.

I have been dabbling with nabbi bead art for a while, and I decided to put this skill (and Dan’s ironing skills – I cannot manage an iron with my wrist/arm pain) to use, these are the presents I made. I did cards for all 5 members of staff, and they also go a box of chocolates.

Colby was in Turtles class
Amelia was in Elephant class

Then I had a think about extra presents for the teachers who did so much over this year for all the kids, and these are what I made. They are far from perfect, but I’m really happy with how they turned out.

Door plaques

I have been told that I should make things and sell them. I could do cards, hair clips (I already made one for Moo which I’ll include a photo of at the end), key rings, badges, magnets etc. What do you think?

Not perfect but she loves it!
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SIX whole week……. SIX!!!

6 week holidays start today!

Today my Mouse completed his last day in year 3, and my Moomin completed her last day in Year 1.

It’s been a crazy school year, the children spent January to April at home, and we had a few isolation periods too where they were home due to members of their bubble testing positive for covid. This has had an effect on the children (more so CJ than Moo due to his additional needs) learning wise, but they have both worked so hard.

We now have 6 weeks where the children are at home for their summer holidays. We have a few trips away planned, it’s Dan and Moo’s birthday (35 and 6) and I’m sure we will spend a lot of time in the garden (hopefully in the pool), going to the local parks, and in the back street with the kids next door and their bikes. The children next door are the same age as CJ (in the same class at school) and one year younger than Moo, and they get on great. We will also go visit my best girl and her mum (my sister from another set of parents) at the seaside.

Throw some ideas at me for good things to keep kids (8 and nearly 6) busy. I told them we may be able to make slime (but not bring it into the house), and we may go swimming to the new pool in Pontefract.

I hope all those with kids have a good 6 weeks – I might not have any hair by the time they go back to school – wish me luck!