Disabled blogger

Self care…..

Everyone needs self care in their life. It is essential to maintain our hygiene, but what happens when self care leaves you so exhausted that you literally cannot move.

Post self care!

I have just had a shower. I did the essentials, I washed my hair, and washed my body, but that was it. I look like chewbacca, my legs need shaving desperately, but just washing my hair and my body has left me exhausted, feeling dizzy, having minor palpitations, shaking and believe it or not, it makes me sweat – figure that one out!

I have a turban towel to wrap my hair up, and I have a hooded poncho towel that is designed for getting changed in public (beach/swimming pool Etc). I throw those on, and lay down on another towel so the bed doesn’t get wet, whilst my skin air drys. This is particularly helpful for my intertrigo to let air get to my skin.

I am not sleeping well at the moment, so I had a shower using my sleepy shower gel from Lush (it’s my joint favourite alongside Snow Fairy) as the scent helps me relax. I would love to be able to have a soak in the bath, but that is a no no, my bath chair doesn’t allow for soaking, hence having a shower. I’m also itching all over my body, especially my face, which isn’t fun. The itching is usually a pain response, but not sure what is triggering this today.

As we head into a new week what do you do to practice self care? Why not send me some hints that I can try out!

Lots of love xxx

If you can please donate and/or share my gofundme https://gofund.me/03c3b97d

Disabled blogger

I don’t know what to do

Hey all, sorry I have been quiet again, I have been on antibiotics and steroids for a chest infection.

I’m starting to feel my dream slipping away, I have £110 in my gofundme, the chair is roughly £10,000. This chair would change my life, but I just don’t know where to turn for help.

People suggested contacting local sports teams/players Etc, or businesses, but I don’t think they would want to help an individual like me, plus I’m not the most confident person.

If you can help please donate or even share

Thank you xxx SJ xxx

Disabled blogger

Will anything ever go right for me……

Let’s go back to 8:10am today, Monday 18th October 2021……

I was ready…..

The kids were ready…..

The bags were ready…..

My wheelchair was ready…..

I closed the door and put in the key, which then did this……

Donkey princesses and no more….

I noticed the key was bent, looked at it, and next thing I know it is in two pieces in my hand. This is the last thing I needed as we were going to pick up Colby’s best mate on the way.

I had to think on my feet…. I came in, closed the door, pushed the sofa over the door and went out the back.

I sent Colby round to bring my wheelchair, it should have taken 30 seconds, instead they went the long way round and left me waiting, needless to say, I wasn’t impressed. They then had to just about jog to school so we were not late.

I got home and had to come through the back and get my chair through the kitchen which is a nightmare in itself when you have mobility issues.

The only key we now have is Dan’s and he is working, luckily my parents are grabbing the monkeys for me tonight.

I’m chilling on the sofa in my pjs and oodie watching tv.

Have a great week, see you soon

Lots of love xxx

Just a quick reminder – I am currently trying to raise money for a new electric wheelchair. Please go check my story out, and if you cannot donate can you please at least share for me. The link is https://gofund.me/03c3b97d

Disabled blogger

Giving up…..

Do you ever feel like just giving up? Like you don’t know where to turn, who will be there for you, who will help you……. At the moment I feel like giving up.

Everything is getting me down at the moment, and my mental and physical health are suffering. I have no energy, I am sleeping less than I normally sleep (I only get 3-4 hours usually), I’m in pain, my anxiety is majorly high (I cannot stand being in the room as Dan and the kids when they are eating Etc, it makes me want to cry) and I know that I am holding my family back.

There is so much stuff the kids and Dan want to do, but because I cannot join in, they don’t get to do it. I know it stresses Dan out because he knows the effect it has on me mentally, and then there is Colb, he wants to do so much and when we are snuggling on a night he will say “mummy I want to do……… BUT I know you cannot”, to see his face and hear the crack in his voice makes me want to cry.

What’s the point in this post you may ask, well to be honest I don’t know, I am just letting my feelings out.

If you get chance please could you pop over to my gofundme? If you cannot donate can you please share for me, or if you know of any charities that might help can you send me their link.

Sending lots of love from me to you as always

Sx

https://gofund.me/03c3b97d

Disabled blogger

Wow, what a nightmare of a few weeks…..

Hey all, sorry I went AWOL again, but the last few weeks have truly been a nightmare.

First Dan was diagnosed with covid, and even though he is double jabbed he was really poorly. Luckily the kids and I didn’t contract it, but the stress did kick off a bad flare, so I’m struggling with pain, not sleeping leading to exhaustion and just being generally unsettled.

Then today, this happened…….

Arghhhh

I heard a clunk on my chair, and got to my grans to find that my chair had literally snapped, leaving it with a free floating seat, which as you can imagine is not a good thing.

I only got this chair (as a replacement for a faulty one) in March, and while I’m aware that I do cause wear and tear, I don’t cause that much. Luckily the company are sending me out a new frame that will be here on Wednesday.

Carrying on from the chair thing – as you know I am trying to get a new chair that will allow me to go off-road, on the beach Etc. The kids and Dan went geocaching at the weekend, I was left in the car as I couldn’t access the trails. This means what should have been a family day out wasn’t for me.

I have set up a gofundme page (I will link at the end) but if you know anyone from a charity or such who might me able to help with a donation please could you let me know, or give them my email address. Even just sharing the gofundme link would be amazing.

Sending love to you all

Sx

https://gofund.me/03c3b97d

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It’s an under the blankety (or rain poncho sorta day 👨🏼‍🦼🌂🌧 (not sponsored)

It’s wet……

The topic is in the title today. It’s freezing and very wet in my part of West Yorkshire. The forecast for today says the rain is well set in for the rest of the day.

I have been to see my grandma this morning, as usual we did the school run on foot/in chair (I drop the kids off at 8:30 for school) and then I wheeled down to grans. She asked me if I could pop to the bread shop for her and just as I got outside, the heavens opened (as my mum would say – love you mum). I was so grateful for my pack away wheelchair poncho (I will link at the end) as I only had a hoodie on. It has a good, is fastened by poppers up the front, and for me it is long enough to keep the majority of my body nice and dry. Mine has elephants on (one of my favourite animal) and I love it. I keep it permanently clipped to my chair so it’s always there in an emergency.

I hope wherever you are in the world you have a bright and sunny day.

Adult Wheelchair Ponchos

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9/11 – the day that left devastation in the hearts of everyone

20 years today, 2 airplanes crashed into the twin towers in New York killing thousands of people. Thousands of innocent people who were grandmas, grandads, mums, dads, brothers, sisters, uncles, aunties, sons, daughters, nieces, nephews and friends.

This was a despicable act of terrorism. What we do forget was it could have also been so much worse, a plane hit the Pentagon, and in Pennsylvania, selfless individuals caused the plane they were on board of to crash to avoid it causing more death.

I don’t think any of us will ever comprehend what happened on that fateful day. The radical views brainwashed into those who gave their life and took the lives of others for Al Qaeda. Nearly 3000 people’s lives were taken on that day.

To all those who fought on that day to rescue as many as they could, the firemen, the EMTs, the police, doctors, nurses, surgeons, even passers by, and those who also gave their life in the line of their duty, I thank you, from the bottom of my heart. I cannot imagine how scared you must have been. So from my part of the UK I send my thanks to you all.

A fitting monument sits at the site of 9/11, and I hope one day to be able to visit and pay my respects.

The World Trade Centre Monument.
Disabled blogger · Family blog

G.E.R.D how I hate you

My poor little man has been up half the night bringing up lots of nasty stomach acid and phlegm, my towels will testify to this.

GERD WE HATE YOU!!!!

He is currently laid on the sofa watching videos on YouTube, I think he will fall asleep soon to be honest as he is yawning his head off. He isn’t getting away with no school work however, I have asked his teacher what to do with him!

It’s awful seeing your babies poorly, especially when there is nothing you can do about it. Because he has Sensory Processing Disorder he struggles with being sick as it freaks him out, and it is hard to comfort him

Have a good day no matter what you are doing, and if you could would you please give me a follow, and share my page.

Kisses xxx
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Back to school Hip Hip Hooooooraaaaaaaay

Stinky and Pinky ready for their first day in year 4 and 2

Have you got little ones? Have they gone back to school? My two went back yesterday. Moo was very reluctant as all she wants to do is stay with me, Colby was so happy to see his best mates.

The kids and I were ready 30 minutes before we needed to set off, this was a shock as usually we are pushing it. Colb even got shoes and socks on with no drama (he has SPD and hates socks).

We did an advance visit on Monday so Colbs could see where he was sat, I could meet his teacher, and then pass information along for her regarding his “quirks”. He is now in year 4, and I’m not going to lie, I’m worried about him progressing up school as he is very very clever but struggles to transfer that onto paper.

Moo is in year 2, and to be honest I am not worried about her. She is on track for gifted and talented pathways. She will soar this year, and she is happy with her teacher.

They both came home last night happy and excited to share their day, let’s see how long it lasts!