Disability · Disabled blogger · Fundraising · Go Fund Me · Mental Health · Uncategorized

F*** you wheelchair services

Stupidity

I don’t have words right now other than F*** you wheelchair services in Wakefield. Because I don’t need a chair for in the house then I don’t qualify.

My chair dumped me again the other day, and yesterday just stopped working in the middle of The Range when I hit one battery light, usually that gives me enough to get back to the car, thank goodness I wasn’t in the middle of the road.

I honestly don’t know how I am going to manage to get a chair that works properly and meets my needs.

To

Charity · Children · Christmas · Disability · Disabled blogger · Family blog · Fundraising · Go Fund Me · Mental Health · School · Uncategorized

Snow joke…..

Snowy Saturday (27/11/21)

So, the winter is finally here. It snowed quite heavily in my part of West Yorkshire on Saturday (much to my kids delight). Where I live the snow didn’t really settle, but up where Dan works still had a fair bit of snow this morning.

Dan’s drive to work at 5:30am on Saturday morning (27/11/21)
Chapel Allerton this morning (29/11/21)

I didn’t do the school run this morning as Moo is still quite poorly and I don’t want her out in the freezing cold. My amazing friend Mel took Colb to school for me, however he insisted on taking his scooter and fell before he had got 50yard from the back gate. I told him to leave the scooter at home but he refused and I didn’t want to have Mel in the cold with her little one while he kicked off. Tomorrow if it’s like this he WILL NOT be taking the damn scooter, I will just have to deal with the tantrum!

I had a thought after seeing him fall, how am I going to manage with the icy and possibly snow covered paths in my wheelchair. We have already seen I can be thrown out of my chair (into nettle bushes and main roads) on a lerfdd red cat dry, sunny day, how am I going to manage when it’s slippy? I have already had one near miss when my brakes didn’t apply quickly enough. To be perfectly honest, I’m scared at the moment. I know I will soon find out, but the school run is going to be an apprehensive one when I finally attempt it.

I have to say, I went to Asda while it was snowing, and I was wearing my M8 Apparel hoodie. It is one of the warmest and cosiest hoodies I have ever had. If you get chance pop by their website and have a look, tell them I sent you! https://m8clothing.com/

Could you also take the time to pop over to my gofundme, and if you cannot donate, please give it a share, or recommend anyone I could get in touch with to help/ways to try and raise some money so I can get my new chair, it’s winter ready and would make me less nervous going out on my own/with the kids. https://gofund.me/03c3b97d

Snowy days!
Inspecting a snowflake.

Stay safe and stay warm

Lots of love, Sx

Mwah
Charity · Disability · Disabled blogger · Family blog · Fundraising · Go Fund Me · Mental Health · Uncategorized

Looks can be deceiving…..

What’s going on inside…..

What do you see in the photo above? I have a smile, I’m posing for a photo, using a filter to make me look better, this is what I do day by day, I put on a face, I smile, I laugh, I do things with my kids, but in the background, what’s really going on…..

I’m thinking of ways to raise money to fund a new wheelchair I am desperately in need of as the one I have is not doing the job it was purchased for. I have researched so many charities to help my chair plight, but they are all turning me down.

I am thinking about how I am going to make Christmas perfect for my kids after missing out when I was having my treatment, and I also need to make sure they have all they need day to day.

I am in pain, but I’m always masking it, I’m so good at it it’s become a norm not a challenge, I have it down to a fine art.

I’m trying to run a home and make sure my partner and kids are fed and watered and have clean clothes and a clean house. That often means I go without things to make sure they are taken care of.

I’m thinking about the way society sees me and views me, do people talk behind my back about me? Do they think I’m lazy for not working, and I guess for asking for help to raise money for my chair, an item most people will say I don’t need, are they commenting on my weight gain from not being able to be active, do they say I’m lazy?

Anyhow, my point in this – when people say I’m ok, they probably are not ok, they just put on the “ok face” so think how you can help, be kind and be careful what you say as words can and do harm.

Lots of love Sxxx

If you could, please pop over to my gofundme, and even if you cannot donate, please please share it for me.

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It’s an under the blankety (or rain poncho sorta day 👨🏼‍🦼🌂🌧 (not sponsored)

It’s wet……

The topic is in the title today. It’s freezing and very wet in my part of West Yorkshire. The forecast for today says the rain is well set in for the rest of the day.

I have been to see my grandma this morning, as usual we did the school run on foot/in chair (I drop the kids off at 8:30 for school) and then I wheeled down to grans. She asked me if I could pop to the bread shop for her and just as I got outside, the heavens opened (as my mum would say – love you mum). I was so grateful for my pack away wheelchair poncho (I will link at the end) as I only had a hoodie on. It has a good, is fastened by poppers up the front, and for me it is long enough to keep the majority of my body nice and dry. Mine has elephants on (one of my favourite animal) and I love it. I keep it permanently clipped to my chair so it’s always there in an emergency.

I hope wherever you are in the world you have a bright and sunny day.

Adult Wheelchair Ponchos

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9/11 – the day that left devastation in the hearts of everyone

20 years today, 2 airplanes crashed into the twin towers in New York killing thousands of people. Thousands of innocent people who were grandmas, grandads, mums, dads, brothers, sisters, uncles, aunties, sons, daughters, nieces, nephews and friends.

This was a despicable act of terrorism. What we do forget was it could have also been so much worse, a plane hit the Pentagon, and in Pennsylvania, selfless individuals caused the plane they were on board of to crash to avoid it causing more death.

I don’t think any of us will ever comprehend what happened on that fateful day. The radical views brainwashed into those who gave their life and took the lives of others for Al Qaeda. Nearly 3000 people’s lives were taken on that day.

To all those who fought on that day to rescue as many as they could, the firemen, the EMTs, the police, doctors, nurses, surgeons, even passers by, and those who also gave their life in the line of their duty, I thank you, from the bottom of my heart. I cannot imagine how scared you must have been. So from my part of the UK I send my thanks to you all.

A fitting monument sits at the site of 9/11, and I hope one day to be able to visit and pay my respects.

The World Trade Centre Monument.
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Back to school Hip Hip Hooooooraaaaaaaay

Stinky and Pinky ready for their first day in year 4 and 2

Have you got little ones? Have they gone back to school? My two went back yesterday. Moo was very reluctant as all she wants to do is stay with me, Colby was so happy to see his best mates.

The kids and I were ready 30 minutes before we needed to set off, this was a shock as usually we are pushing it. Colb even got shoes and socks on with no drama (he has SPD and hates socks).

We did an advance visit on Monday so Colbs could see where he was sat, I could meet his teacher, and then pass information along for her regarding his “quirks”. He is now in year 4, and I’m not going to lie, I’m worried about him progressing up school as he is very very clever but struggles to transfer that onto paper.

Moo is in year 2, and to be honest I am not worried about her. She is on track for gifted and talented pathways. She will soar this year, and she is happy with her teacher.

They both came home last night happy and excited to share their day, let’s see how long it lasts!

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HONEY I’M HOME – well, I’m posting for the first time in a month!!

Well kind of, I know I have been MIA for most of the holidays, and I apologise, did you miss me? (More than likely not, I’m not exactly rich in followers, in fact my followers list is kinda pathetic, but that is enough self pity).

We have been busy in the Roberts/Clarkson/Earles household. We had a trip to London (where one of my bucket list wishes came true), we visited several museums including Duxford, the kids and Dan went paddleboarding,we have been to Ipswich twice, we went to watch my little brother kart for Kartforce ( https://www.instagram.com/kartforce.uk/ ) up in Teeside (more about that in a upcoming post), been to the park, eaten lots of food, played out in the garden and lots of other things. Oh and I have had 2 bad falls out of my wheelchair resulting in injury to myself, and also to Colby, luckily they were not too bad. The fall highlighted lots of issues, (which again I’ll follow up in a later post).

The children looking down the River Thames stood at St Kathrine’s Dock from underneath Tower Bridge

Keep looking out for me dropping posts more regularly, I will post to my insta and facebook when a new post goes up!

Have a good Sunday – 2 days left until my babies go back to school – I am counting down, I love them but I need a rest!

Check out my instagram if you get the time!

https://www.instagram.com/sassy_sarahjane1981/

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Handwriting is hard work!

Hey all, hope you are all well. We are on the second week of summer holidays for the kids (vacation for those of you not in the UK) and as you might have seen in one of my previous posts, I made some cards for the kids teachers.

An example of the card.

Now while I was happy with these, I didn’t like my writing, and I’m hoping I can sell some to raise money towards the new chair I want, which means it needs a lot of improvement.

I have decided I am going to try learning modern calligraphy, I have watched some YouTube videos, and I have a practice book and pen set (but the fountain pen hurts my fingers, I forgot what it was like to write with one) and had a try today. I am definitely going to follow the advice on Natalie’s Outlet

YouTube – https://youtu.be/Jzlx9TMCsVA

Instagram – https://instagram.com/nataliesoutlet?utm_medium=copy_link

I may also get some of the pens she recommended to make my writing better. These are my attempts so far

Not perfect, but happy!

Let me know what you think, and if you have any tips. Writing makes my hands hurt so so bad, but I want it to be beautiful for the cards as it’s the personal touch instead of a printed generic message.

Have a good day/week,

*mwah*
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To go fund me or not to go fund me that is the question….

Some of you might remember that I posted about wanting an all singing all dancing off-roading wheelchair I had seen, that was unfortunatly £11,000 to buy (here is a little reminder……

😍😍😍😍😍

Since then I have several people asking me why I don’t set up a go fund me, and I have said, I didn’t post about the chair to be “begging for money” that really isn’t my thing, I HATE asking for help as all my friends will tell you.

We did set up a go fund me several months ago to buy my current chair – we got £15 – luckily I had money from my gran which meant I could buy one. It’s great, but doesn’t do off-road like I need.

So my question is, do I set up a go fund me, as several people have suggested/offered to set up for me, or not, and realistically how effective would it be, I’m not a big time blogger, I don’t make YouTube content, I only have 1.5k followers on Instagram and I just think it would be a flop.

What to do!